First National ALS Registry Report

Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig's disease, is a progressive disease that attacks the nerve cells that control voluntary movement. The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. No one knows for sure what causes ALS and currently there is no cure. If you have the disease, consider joining the Registry and completing the brief risk-factor surveys because your answers could help scientists defeat ALS.

Join the National ALS Registry and
Take ALS Risk Factor Surveys

Already Registered? Log In Here to Access Your Account and Take ALS Risk Factor Surveys

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ALS Service Locator

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Date as of 11/1/2012
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Registry Topics

information iconRegistry Resources

Information about ALS, the National ALS Registry and more…

a magnifying glassALS Research Notification

Connecting PALS and Researchers concerning ALS clinical trials and studies

stethoscope iconALS Bioregistry

Plans for creating a national biorepository

Surveillance iconALS Surveillance Projects

ATSDR’s State and Metropolitan Surveillance Projects

Feedback iconFeedback and Help

Contact Us, FAQs, Registry Help

pub and reports iconPublications and Conferences

National ALS Registry documents and conference information

Edu Training iconEducation & Training

CME/CEU Modules for Health Professionals

Multimedia iconMultimedia Tools

Videos, Webinars, Podcast, e-Cards, Buttons

 


 

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Contact Us:
  • Agency for Toxic
    Substances and
    Disease Registry
    4770 Buford Hwy NE
    Atlanta, GA 30341

  • 800-232-4636
    TTY:(888) 232-6348
    Monday-Friday:
    8am-8pm
    Closed Holidays
  • Contact CDC-INFO
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Agency for Toxic Substances and Disease Registry, 4770 Buford Hwy NE, Atlanta, GA 30341, USA
Contact CDC: 800-232-4636 / TTY: 888-232-6348
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