- Newborn Screening Links

• National Newborn Screening and Genetics Resource Center
  http://GeNeS-R-US.uthscsa.edu
   
• Maternal and Child Health Bureau
  http://www.mchb.hrsa.gov/
   
• Newborn Screening Report Addresses Inconsistencies and Controversies 
  News Release, American Academy of Pediatrics – August 7, 2000
  http://www.aap.org/advocacy/archives/augscreening.htm

• National Center for Environmental Health, Division of Laboratory Sciences
  http://www.cdc.gov/nceh/dls/newborn_screening.htm
    
• National Laboratory Training Network
  Provides laboratory training courses and an online lending library
  http://www.phppo.cdc.gov/nltn/default.asp
   
• Morbidity and Mortality Weekly Report (MMWR)
  Using Tandem Mass Spectrometry for Metabolic Disease Screening Among Newborns
  http://www.cdc.gov/mmwr/PDF/RR/RR5003.pdf
    
• National Center on Birth Defects and Developmental Disabilities
  http://www.cdc.gov/ncbddd/

• Save Babies Through Screening
  http://www.savebabies.org/
    
• Exceptional Parent
  http://www.eparent.com/healthcare
   
• Fatty Oxidation Disorders Family Support Group
  http://www.fodsupport.org/index.htm
   
• National Coalition for PKU and Allied Disorders
  http://www.pku-allieddisorders.org/home.htm
   
• National PKU News
  http://www.pkunews.org
   
• Organic Acidemia Association
  http://www.oaanews.org/
   
• The Sickle Cell Information Center
  The Georgia Comprehensive Sickle Cell Center at Grady Health System
  http://www.emory.edu/PEDS/SICKLE/
   
• American Academy of Pediatrics
  Health Supervision for Children With Sickle Cell Disease
  American Academy of Pediatrics, Pediatrics, Vol 109, #3 March 2002
  http://www.aap.org/policy/re1011.html

• Maternal Phenylketonuria
  American Academy of Pediatrics, Pediatrics. Vol 107, #2 February 2001
  http://www.aap.org/policy/re0024.html
    
• Association of Public Health Laboratories
  http://www.aphl.org
    
• American College of Medical Genetics
  http://www.acmg.net
    
• NCCLS
  http://www.nccls.org/
   
• March of Dimes 
  • Genetic Education Programs: Online descriptions
    http://www.modimes.org/Programs/428.htm
     
  • Fact Sheets for consumers and professionals on Newborn Screening, birth defects and genetic disorders. Downloadable at: http://www.modimes.org/HealthLibrary/fact_sheets.htm
      
• History
  • PKU Basics on the Net
    http://www.fesoc.com/pku/history.htm
     
  • PKU - The Beginnings
    http://www.pku-allieddisorders.org/guthrie.htm