Note:

  • Persons with ALS (PALS) who are 18 years or older, U.S. Citizens or Legal Residents of the U.S. are eligible for either a PALS Account or a Public Account.
  • If you are a person with ALS who is not a U.S. Citizen or Legal Resident of the U.S., you may only register for a Public Account.
  • National ALS Registry Consent Form

Persons with ALS (PALS) Account

This account is designed for persons with ALS only. This account allows persons with ALS to complete ALS related surveys and update account information. Surveys are brief and participants can do them all at once or over a period of time. Information collected from these surveys could possibly help persons with ALS in the future by allowing health care providers, researchers, and other interest groups better understand who gets ALS. The surveys may also be used to promote research on improving disease management and developing standards of care for ALS.
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Agency for Toxic Substances and Disease Registry, 4770 Buford Hwy NE, Atlanta, GA 30341, USA
Contact CDC: 800-232-4636 / TTY: 888-232-6348