Male participants who are 40 to 70 years of age who have PSA test (LBXP1) levels outside the reference range (>4 ng/mL) are sent a report of findings (ROF) letter informing them of their PSA test result and encouraging them to follow-up with a health care provider to determine if any other tests or procedures are needed. This follow-up phone questionnaire occurs 6 months after their examination (approximately 4-5 months after the ROF letter was mailed). The purpose of the questions is to assess how many men already knew their PSA status, what they know about the PSA test, prostate disease, including prostate cancer and what actions they took after being notified of their PSA results.
The PSA follow-up questionnaire is mentioned in the informed consent and also in the reporting letter for elevated PSA results. Trained interviewers contacted those participants with high PSA results by telephone for an interview.
An automated system for managing calls (i.e., setting up appointments, tracking the calls to contact the participant, and reasons for refusal) is maintained in the Field Follow up Management System (FFMS). Responses to interview questions are keyed directly into the FFMS, a web based application of the Integrated Survey Information System (ISIS) software used for other NHANES components.
Male participants who live in households with no telephones were sent an additional letter asking them to call a toll free number to answer a few questions about their PSA results.
Male participants age 40 – 70 years with PSA levels beyond the reference range (PSA >4 ng/mL).
Exclusion Criteria: Circumstances when communication or cognitive difficulties make it impossible for the participant to respond to questionnaire would result in exclusion.
Bilingual (English and Spanish) trained interviewers contacted participants with PSA results outside the reference range by telephone to request an interview. Call attempts were scheduled 6 months after the date of examination, approximately 4-5 months after participants receive the results notification letter. In order to determine what actions persons take with the information that their PSA is elevated, it is necessary to allow time to have initiated or implemented such actions after notification of elevated results. Therefore, the telephone interview occurs at least a few months after notification.
The PSA phone follow-up questions were evaluated in NCHS’s Questionnaire Design Research Laboratory before the final questionnaire was approved by the NHANES Ethics Review Board (ERB).
Combination of these data with the 2003-2004 cycle is recommended when doing analysis. These data should not be used with sample weights to make national estimates since the response rate for followup is below 50%. (Only 24 out of 52 eligible completed the questionnaire.)
Age of eligibility changed from 40 years and older in 2003-2004 to 40 – 70 years in 2005-2006.
The data should be linked to the laboratory data (Lab 11, LBXP1) by sequence number.
Examples of reasons for non-response coded as “communication problem or cognitive impairment” may include hearing impairment, poor memory recall, and language barrier.
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Complete | 24 | 24 | PSQ020 |
2 | Partial | 0 | 24 | PSQ020 |
3 | Not done | 28 | 52 | |
. | Missing | 0 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Unable to contact SP | 23 | 23 | End of Section |
2 | Refusal | 5 | 28 | End of Section |
3 | Communication problem or cognitive impairment | 0 | 28 | End of Section |
4 | SP expired | 0 | 28 | End of Section |
5 | Did not receive letter | 0 | 28 | End of Section |
6 | Other | 0 | 28 | End of Section |
. | Missing | 24 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 16 | 16 | |
2 | No | 8 | 24 | PSQ040 |
3 | Heard of PSA, but do not know what the test is for | 0 | 24 | |
7 | Refused | 0 | 24 | PSQ040 |
9 | Don't know | 0 | 24 | PSQ040 |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 2 | 2 | |
2 | No | 14 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 14 | 14 | |
2 | No | 2 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 4 | 4 | |
2 | No | 12 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 2 | 2 | |
2 | No | 14 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 16 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 1 | 1 | |
2 | No | 15 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 16 | 16 | |
2 | No | 8 | 24 | PSQ110 |
7 | Refused | 0 | 24 | PSQ110 |
9 | Don't know | 0 | 24 | PSQ110 |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | One year or less | 3 | 3 | |
2 | 2 to 5 years | 3 | 6 | |
3 | More than 5 years | 10 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 0 | 16 | |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 5 | 5 | PSQ080 |
2 | No | 11 | 16 | |
7 | Refused | 0 | 16 | PSQ080 |
9 | Don't know | 0 | 16 | PSQ080 |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | One year or less | 2 | 2 | |
2 | 2 to 5 years | 3 | 5 | |
3 | More than 5 years | 5 | 10 | |
7 | Refused | 0 | 10 | |
9 | Don't know | 1 | 11 | |
. | Missing | 41 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | I specifically requested the test | 3 | 3 | |
2 | Health care provider | 13 | 16 | PSQ100A |
7 | Refused | 0 | 16 | PSQ110 |
9 | Don't know | 0 | 16 | PSQ110 |
. | Missing | 36 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 3 | 3 | |
7 | Refused | 0 | 3 | |
9 | Don't know | 0 | 3 | |
. | Missing | 49 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 3 | 3 | |
7 | Refused | 0 | 3 | |
9 | Don't know | 0 | 3 | |
. | Missing | 49 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 1 | 1 | |
2 | No | 2 | 3 | |
7 | Refused | 0 | 3 | |
9 | Don't know | 0 | 3 | |
. | Missing | 49 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 3 | 3 | |
7 | Refused | 0 | 3 | |
9 | Don't know | 0 | 3 | |
. | Missing | 49 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 2 | 2 | |
2 | No | 1 | 3 | |
7 | Refused | 0 | 3 | |
9 | Don't know | 0 | 3 | |
. | Missing | 49 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | PSQ110 |
2 | No | 3 | 3 | PSQ110 |
7 | Refused | 0 | 3 | PSQ110 |
9 | Don't know | 0 | 3 | PSQ110 |
. | Missing | 49 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 11 | 11 | |
2 | No | 2 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 5 | 5 | |
2 | No | 8 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 6 | 6 | |
2 | No | 7 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 7 | 7 | |
2 | No | 6 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 4 | 4 | |
2 | No | 6 | 10 | |
7 | Refused | 0 | 10 | |
9 | Don't know | 3 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 12 | 12 | |
7 | Refused | 0 | 12 | |
9 | Don't know | 1 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 23 | 23 | PSQ130A |
2 | No | 1 | 24 | |
7 | Refused | 0 | 24 | |
9 | Don't know | 0 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 1 | 1 | PSQ210 |
2 | No | 0 | 1 | PSQ210 |
7 | Refused | 0 | 1 | PSQ210 |
9 | Don't know | 0 | 1 | PSQ210 |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 20 | 20 | |
2 | No | 3 | 23 | |
7 | Refused | 0 | 23 | |
9 | Don't know | 0 | 23 | |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 21 | 21 | |
2 | No | 2 | 23 | |
7 | Refused | 0 | 23 | |
9 | Don't know | 0 | 23 | |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 16 | 16 | |
2 | No | 7 | 23 | |
7 | Refused | 0 | 23 | |
9 | Don't know | 0 | 23 | |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 3 | 3 | |
2 | No | 20 | 23 | |
7 | Refused | 0 | 23 | |
9 | Don't know | 0 | 23 | |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 2 | 2 | |
2 | No | 21 | 23 | |
7 | Refused | 0 | 23 | |
9 | Don't know | 0 | 23 | |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 21 | 21 | |
2 | No | 1 | 22 | PSQ180 |
7 | Refused | 0 | 22 | PSQ180 |
9 | Don't know | 1 | 23 | |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 15 | 15 | |
2 | No | 7 | 22 | PSQ180 |
7 | Refused | 0 | 22 | PSQ180 |
9 | Don't know | 0 | 22 | PSQ180 |
. | Missing | 30 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 13 | 13 | |
2 | No | 2 | 15 | PSQ180 |
7 | Refused | 0 | 15 | PSQ180 |
9 | Don't know | 0 | 15 | PSQ180 |
. | Missing | 37 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 4 | 4 | |
2 | No | 6 | 10 | |
7 | Refused | 0 | 10 | |
9 | Don't know | 3 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 9 | 9 | |
2 | No | 4 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 4 | 4 | |
2 | No | 9 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 1 | 1 | |
2 | No | 12 | 13 | |
7 | Refused | 0 | 13 | |
9 | Don't know | 0 | 13 | |
. | Missing | 39 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 15 | 15 | |
2 | No | 8 | 23 | PSQ210 |
7 | Refused | 0 | 23 | PSQ210 |
9 | Don't know | 0 | 23 | PSQ210 |
. | Missing | 29 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 14 | 14 | PSQ210 |
2 | No | 1 | 15 | |
7 | Refused | 0 | 15 | PSQ210 |
9 | Don't know | 0 | 15 | PSQ210 |
. | Missing | 37 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 1 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 1 | 1 | |
2 | No | 0 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 1 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 1 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 1 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 0 | 0 | |
2 | No | 1 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | Yes | 1 | 1 | |
2 | No | 0 | 1 | |
7 | Refused | 0 | 1 | |
9 | Don't know | 0 | 1 | |
. | Missing | 51 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 13 | 13 | |
2 | False | 7 | 20 | |
7 | Refused | 0 | 20 | |
9 | Don't know | 4 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 19 | 19 | |
2 | False | 0 | 19 | |
7 | Refused | 0 | 19 | |
9 | Don't know | 5 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 22 | 22 | |
2 | False | 1 | 23 | |
7 | Refused | 0 | 23 | |
9 | Don't know | 1 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 14 | 14 | |
2 | False | 2 | 16 | |
7 | Refused | 0 | 16 | |
9 | Don't know | 8 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 17 | 17 | |
2 | False | 3 | 20 | |
7 | Refused | 0 | 20 | |
9 | Don't know | 4 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 17 | 17 | |
2 | False | 1 | 18 | |
7 | Refused | 0 | 18 | |
9 | Don't know | 6 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 19 | 19 | |
2 | False | 0 | 19 | |
7 | Refused | 0 | 19 | |
9 | Don't know | 5 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 21 | 21 | |
2 | False | 1 | 22 | |
7 | Refused | 0 | 22 | |
9 | Don't know | 2 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | True | 19 | 19 | |
2 | False | 0 | 19 | |
7 | Refused | 0 | 19 | |
9 | Don't know | 5 | 24 | |
. | Missing | 28 | 52 |
Code or Value | Value Description | Count | Cumulative | Skip to Item |
---|---|---|---|---|
1 | English | 23 | 23 | |
2 | Spanish | 1 | 24 | |
3 | English and Spanish | 0 | 24 | |
4 | Other | 0 | 24 | |
. | Missing | 28 | 52 |