Table of Contents

Component Description

The NHANES program suspended field operations in March 2020 due to the coronavirus disease 2019 (COVID-19) pandemic. As a result, data collection for the NHANES 2019-2020 cycle was not completed and the collected data are not nationally representative. Therefore, data collected from 2019 to March 2020 were combined with data from the NHANES 2017-2018 cycle to form a nationally representative sample of NHANES 2017-March 2020 pre-pandemic data. These data are available to the public. Please refer to the Analytic Notes section for more details on the use of the data.

The Kidney Conditions – Urology File (variable name prefix P_KIQ_U) provides personal interview data on kidney disease, kidney stones, urinary incontinence, and nocturia.

Eligible Sample

All participants aged 20 years and older in the NHANES 2017-March 2020 pre-pandemic sample were eligible.

Interview Setting and Mode of Administration

Questions on kidney disease, dialysis, kidney stones, and passing a kidney stone (KIQ022, KIQ025, KIQ026, KID029) were asked in the home, by trained interviewers, using the Computer-Assisted Personal Interview (CAPI) system.

Questions on urinary incontinence (KIQ005, KIQ010, KIQ042, KIQ430, KIQ044, KIQ450, KIQ046, KIQ470, KIQ050, KIQ052) and nocturia (KIQ480) were asked at the Mobile Examination Center, by trained interviewers, using the CAPI system as part of the MEC interview. Both proxy interviewers and interpreters were permitted for these questions.

For details on the administration of the P_KIQ_U section, please refer to the 2017-2018 and 2019-2020 kidney questionnaires on the NHANES website.

Quality Assurance & Quality Control

The CAPI system is programmed with built-in consistency checks to reduce data entry errors. CAPI also uses online help screens to assist interviewers in defining key terms used in the questionnaire.

Data Processing and Editing

Frequency counts were verified during the preparation of the file.

Analytic Notes

The COVID-19 pandemic required suspension of NHANES 2019-2020 field operations in March 2020 after data were collected in 18 of the 30 survey locations in the 2019-2020 sample. Because the collected data from 18 locations were not nationally representative, these data were combined with data from the previous cycle (2017-2018) to create a 2017-March 2020 pre-pandemic data file. The resulting sample weights in the demographic file should be used to calculate estimates from the combined cycles. These sample weights are not appropriate for independent analyses of the 2019-2020 data and will not yield nationally representative results for either the 2017-2018 data alone or the 2019-March 2020 data alone. Please refer to the NHANES website for additional information for the NHANES 2017-March 2020 pre-pandemic data, and for the previous 2017-2018 public use data file with specific weights for that 2-year cycle.

Incontinence Severity Index

Questions KIQ.005 “How often do you have urinary leakage? Would you say …” and KIQ.010 “How much urine do you lose each time? Would you say…” comprise the Incontinence Severity Index (Sandvik, 2000). This index, based on information about frequency in four levels and amount of leakage in three levels, can be multiplied to obtain an index value (1-12). The four-level severity index is based on the following index values: 1-2, slight; 3-6, moderate; 8-9, severe; 10-12, very severe.

Missing data

Although KIQ005 – KIQ480 were targeted to all participants 20 years and older, data for these questions are missing for 13% of participants who completed the household interview but did not complete the MEC CAPI interview.

Appropriate sample weights

Interview weight: KIQ022- KIQ029
Examination weight: KIQ005-KIQ480

The interview weight should be used when an analysis uses data only from the household interview. If an analysis uses data from the MEC (MEC interview, examination, or laboratory data) exclusively, or in conjunction with the household interview data, the examination weight should be used.

Please refer to the NHANES Analytic Guidelines and the on-line NHANES Tutorial for further details on the use of sample weights and other analytic issues.

References

Codebook and Frequencies

SEQN - Respondent sequence number

Variable Name:
SEQN
SAS Label:
Respondent sequence number
English Text:
Respondent sequence number.
Target:
Both males and females 20 YEARS - 150 YEARS

KIQ022 - Ever told you had weak/failing kidneys?

Variable Name:
KIQ022
SAS Label:
Ever told you had weak/failing kidneys?
English Text:
{Have you/Has SP} ever been told by a doctor or other health professional that {you/s/he} had weak or failing kidneys? Do not include kidney stones, bladder infections, or incontinence.
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 383 383
2 No 8834 9217 KIQ026
7 Refused 0 9217 KIQ026
9 Don't know 15 9232 KIQ026
. Missing 0 9232

KIQ025 - Received dialysis in past 12 months?

Variable Name:
KIQ025
SAS Label:
Received dialysis in past 12 months?
English Text:
In the past 12 months, {have you/has SP} received dialysis (either hemodialysis or peritoneal dialysis)?
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 39 39
2 No 344 383
7 Refused 0 383
9 Don't know 0 383
. Missing 8849 9232

KIQ026 - Ever had kidney stones?

Variable Name:
KIQ026
SAS Label:
Ever had kidney stones?
English Text:
{Have you/Has SP} ever had kidney stones?
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 866 866
2 No 8342 9208 KIQ005
7 Refused 0 9208 KIQ005
9 Don't know 24 9232 KIQ005
. Missing 0 9232

KIQ029 - Pass kidney stone in past 12 months?

Variable Name:
KIQ029
SAS Label:
Pass kidney stone in past 12 months?
English Text:
In the past 12 months {have you/has SP} passed a kidney stone?
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 141 141
2 No 710 851
7 Refused 0 851
9 Don't know 15 866
. Missing 8366 9232

KIQ005 - How often have urinary leakage?

Variable Name:
KIQ005
SAS Label:
How often have urinary leakage?
English Text:
Many people have leakage of urine. The next few questions ask about urine leakage. How often {do you/does SP} have urinary leakage? Would {you/s/he} say . . .
English Instructions:
CAPI INSTRUCTION: HELP SCREEN: Other terms for urinary leakage are not being able to hold your urine until you can reach a toilet, not being able to control your bladder, loss of urine control.
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Never 5105 5105 KIQ042
2 Less than once a month 893 5998
3 A few times a month 818 6816
4 A few times a week 541 7357
5 Every day and/or night 599 7956
7 Refused 4 7960 KIQ042
9 Don't know 9 7969 KIQ042
. Missing 1263 9232

KIQ010 - How much urine lose each time?

Variable Name:
KIQ010
SAS Label:
How much urine lose each time?
English Text:
How much urine {do you/does SP} lose each time? Would {you/s/he} say . . .
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Drops 1935 1935
2 Small splashes 613 2548
3 More 298 2846
7 Refused 2 2848
9 Don't know 3 2851
. Missing 6381 9232

KIQ042 - Leak urine during physical activities?

Variable Name:
KIQ042
SAS Label:
Leak urine during physical activities?
English Text:
During the past 12 months, {have you/has SP} leaked or lost control of even a small amount of urine with an activity like coughing, lifting or exercise?
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 1970 1970
2 No 5985 7955 KIQ044
7 Refused 4 7959 KIQ044
9 Don't know 9 7968 KIQ044
. Missing 1264 9232

KIQ430 - How frequently does this occur?

Variable Name:
KIQ430
SAS Label:
How frequently does this occur?
English Text:
How frequently does this occur? Would {you/s/he} say this occurs . . .
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Less than once a month 829 829
2 A few times a month 581 1410
3 A few times a week 311 1721
4 Every day and/or night 245 1966
7 Refused 2 1968
9 Don't know 0 1968
. Missing 7264 9232

KIQ044 - Urinated before reaching the toilet?

Variable Name:
KIQ044
SAS Label:
Urinated before reaching the toilet?
English Text:
During the past 12 months, {have you/has SP} leaked or lost control of even a small amount of urine with an urge or pressure to urinate and {you/he/she} couldn't get to the toilet fast enough?`
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 2145 2145
2 No 5808 7953 KIQ046
7 Refused 5 7958 KIQ046
9 Don't know 9 7967 KIQ046
. Missing 1265 9232

KIQ450 - How frequently does this occur?

Variable Name:
KIQ450
SAS Label:
How frequently does this occur?
English Text:
How frequently does this occur? Would {you/s/he} say this occurs. . .
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Less than once a month 932 932
2 A few times a month 633 1565
3 A few times a week 382 1947
4 Every day and/or night 196 2143
7 Refused 0 2143
9 Don't know 2 2145
. Missing 7087 9232

KIQ046 - Leak urine during nonphysical activities

Variable Name:
KIQ046
SAS Label:
Leak urine during nonphysical activities
English Text:
During the past 12 months, {have you/has SP} leaked or lost control of even a small amount of urine without an activity like coughing, lifting, or exercise, or an urge to urinate?
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Yes 772 772
2 No 7178 7950 KIQ048A
7 Refused 5 7955 KIQ048A
9 Don't know 11 7966 KIQ048A
. Missing 1266 9232

KIQ470 - How frequently does this occur?

Variable Name:
KIQ470
SAS Label:
How frequently does this occur?
English Text:
How frequently does this occur? Would {you/s/he} say this occurs . . .
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Less than once a month 244 244
2 A few times a month 199 443
3 A few times a week 154 597
4 Every day and/or night 174 771
7 Refused 0 771
9 Don't know 1 772
. Missing 8460 9232

KIQ048A - CHECK ITEM

Variable Name:
KIQ048A
English Instructions:
BOX 1. CHECK ITEM: IF 'YES' (CODE '1') IN KIQ042 OR KIQ044 OR KIQ046, CONTINUE WITH KIQ050. OTHERWISE, GO TO KIQ480.
Target:
Both males and females 20 YEARS - 150 YEARS

KIQ050 - How much did urine leakage bother you?

Variable Name:
KIQ050
SAS Label:
How much did urine leakage bother you?
English Text:
During the past 12 months, how much did {your/her/his} leakage of urine bother {you/her/him}? Please select one of the following choices:
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Not at all 1137 1137
2 Only a little 1091 2228
3 Somewhat 613 2841
4 Very much 269 3110
5 Greatly 227 3337
7 Refused 1 3338
9 Don't know 1 3339
. Missing 5893 9232

KIQ052 - How much were daily activities affected?

Variable Name:
KIQ052
SAS Label:
How much were daily activities affected?
English Text:
During the past 12 months, how much did {your/her/his} leakage of urine affect {your/her/his} day-to-day activities? Please select one of the following choices:
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
1 Not at all 2297 2297
2 Only a little 601 2898
3 Somewhat 285 3183
4 Very much 96 3279
5 Greatly 58 3337
7 Refused 2 3339
9 Don't know 0 3339
. Missing 5893 9232

KIQ480 - How many times urinate in night?

Variable Name:
KIQ480
SAS Label:
How many times urinate in night?
English Text:
During the past 30 days, how many times per night did {you/SP} most typically get up to urinate, from the time {you/s/he} went to bed at night until the time {you/he/she} got up in the morning. Would {you/s/he} say
Target:
Both males and females 20 YEARS - 150 YEARS
Code or Value Value Description Count Cumulative Skip to Item
0 0 2130 2130
1 1 2970 5100
2 2 1568 6668
3 3 814 7482
4 4 241 7723
5 5 or more 228 7951
7 Refused 1 7952
9 Don't know 14 7966
. Missing 1266 9232