Improving Surveys by Sharing Knowledge
Below is a list of possible reasons that people do not participate in clinical trials. For each of the following, please indicate whether you agree that it was a reason you did not participate in a clinical trial.
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Abstract: For the Adolescent and Young Adult (AYA) Cancer Survivors Study, the National Cancer Institute (NCI) is developing a survey that examines the quality of care and related outcomes among AYA in the first year following their cancer diagnosis. NCI contracted with Westat to conduct two rounds of testing on the survey. The first round used cognitive interview techniques to test survey content. The second round will test the format and layout of the web and paper instruments. Between January 16 and February 19, 2008, 14 cognitive interviews were conducted by Westat senior survey methodologists with extensive experience in cognitive testing. The interviews were conducted in-person at Westat and lasted an hour to an hour-and-a-half. Respondents were paid $50 for participating. This memo describes the cognitive testing recruiting effort, documents revisions to the questionnaire made during testing, presents overall observations and key findings, summarizes detailed results and provides recommendations for further questionnaire revisions.
Kudela, M.S., Robins, C., Stark, D., Dean, D., and Levin, K., 2008, Results of AYA Cognitive Testing, Rockville, MD: Westat. https://wwwn.cdc.gov/QBank/Report.aspx?1059